American Speech-Language-Hearing Association
Making effective communication, a human right, accessible and achievable for all.
National Aphasia Association
A nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families
American Heart Association/American Stroke Association
National Institutes of Health: National Institute of Neurological Disorders and Stroke
Dedicated to reducing the burden of neurological disease
Aphasia Hope Foundation
Information and resources on aphasia.
National Stroke Association: Aphasia
The Stroke Network
Aphasia Corner Blog
Please go to The National Aphasia Association for a full listing of community centers and programs.
- New Jersey — The Adler Aphasia Center
- Maryland — Snyder Center for Aphasia Life Enhancement
- Virginia — The Stroke Comeback Center
- North Carolina — The Aphasia Project
- Texas — Aphasia Center of West Texas
- Toronto, CANADA — Aphasia Institute
- Ontario, CANADA — York-Durham Aphasia Centre
National Parkinson Foundation
The Michael J. Fox Foundation for Parkinson’s Research
Parkinson’s Disease Foundation
National Center for Biotechnology Information (NCBI): Parkinson’s Disease
Parkinson’s Disease Foundation info on LSVT
www.pdf.org (PDF download)
Stroke Connection Magazine often has articles for caregivers; here some tips from the November 2010 issue.
- Take stock of your abilities, needs and concerns. Ask yourself: Am I able to be a caregiver?
- Ask yourself what you need to do tomorrow, next week, next month and next year to get through this illness. If the time frame is too large, make smaller time assessments of your needs.
- Determine if your loved one understands and accepts the demands of the illness.
- Develop a care coaching team — and make a list. Include doctors, nurses, therapists, social workers, financial advisors, attorneys, family members and friends. Make sure the list includes phone numbers and e-mail addresses and is never far from your phone.
- Learn to laugh at the little things. Time is precious.
- Find time to talk, cry, laugh, discover, give, take, inspire, hope and dream.
- Protect your own health. That means eating a good diet and getting regular physical activity and respite care. Get the sleep you need and visit your doctor regularly.
- De-stress: Implement stress reduction techniques such as exercise, massage, meditation, journaling or a support group.
- Make sure your home is set up to provide safe care.
- Use appropriate technology, such as smart phones, medication reminders, life alerts, drop-foot therapeutic devices.
- Know your limits and set appropriate boundaries.
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